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Most cited papers from Desmoid Tumor Research Foundation

What are the most cited papers from Desmoid Tumor Research Foundation?

The most cited paper from Desmoid Tumor Research Foundation is "Capturing Patient Voice to Improve Outcomes That Matter to Patients with Desmoid Tumor" (Bernd Kasper, Mrinal M. Gounder, Lynne Hernandez et al., 2024), with 14 citations. Next come "Successful implementation of an international desmoid tumor virtual tumor board: A novel platform for the management of rare tumors" (7) and "Nirogacestat—the pathway to approval of the first treatment for desmoid tumors, a rare disease" (6).

Showing 10 of 10 papers. Every paper is listed.

Most cited papers, sortable by citations and release date
#Paper
1 Capturing Patient Voice to Improve Outcomes That Matter to Patients with Desmoid Tumor Bernd Kasper, Mrinal M. Gounder, Lynne Hernandez et al. · Cancer Management and Research Open access Jun 2024 14
2 Successful implementation of an international desmoid tumor virtual tumor board: A novel platform for the management of rare tumors Aaron R. Weiss, Marlene Portnoy, Jeanne Whiting et al. · Rare Tumors Open access 2020 7
3 Nirogacestat—the pathway to approval of the first treatment for desmoid tumors, a rare disease Shivaani Kummar, Nam Quoc Bui, Wells A. Messersmith et al. · Therapeutic Advances in Rare Disease Open access 2025 6
4 Are the Pieces Starting to Come Together for Management of Desmoid Tumors? Anna C. Greene, Brian Andrew Van Tine · Clinical Cancer Research 12 Jul 2022 3
5 A study to learn if nirogacestat works and is safe for adult participants with desmoid tumors: a plain language summary of the DeFi study Bernd Kasper, Jeanne Whiting, Dana Lawson et al. · Future Oncology Open access 12 Mar 2025 2
6 164P The association of pain with function for adult patients with desmoid tumor: Findings from the desmoid tumor research foundation natural history study (2025) Anton Lucas, Sicheng Zhou, L. Hernandez et al. · ESMO Open Open access Mar 2025 1
7 The impact of desmoid tumors: insights from the Desmoid Tumor Research Foundation Natural History Study, 2017–2023 Amanda Lucas, Shengfan Zhou, Lynne Hernandez et al. · Orphanet Journal of Rare Diseases Open access 14 Oct 2025 0
8 Impact and Safety of Pregnancy on Desmoid Fibromatosis Management in the Era of Active Surveillance. An International Multicenter Retrospective Observational Study Marco Fiore, Silva Ljevar, Chandrajit P. Raut et al. · SSRN Electronic Journal PreprintOpen access 2024 0
9 149P Treatment landscape for desmoid tumors: Desmoid Tumor Research Foundation Natural History Study Kelly Mercier, L. Hernandez, Anton Lucas et al. · ESMO Open Open access Mar 2024 0
10 148P The impact of desmoid tumors on patients' quality of life: Desmoid Tumor Research Foundation Natural History Study Kelly Mercier, L. Hernandez, Arthur M. Lucas et al. · ESMO Open Open access Mar 2024 0

Citations are OpenAlex's own counts, from its 2026-09-23 snapshot, so the ranking can differ from Google Scholar or Web of Science. A paper is listed for an institution when any of its authors gave it as an affiliation; retracted papers and papers whose citation count cannot be traced to citing works are left out, and a preprint and the article it became are shown once. Release dates are OpenAlex's: where a source gave only a month or a year, that is what is shown. How the lists are chosen.