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Nonprofit · Danbury · United States

National Organization for Rare Disorders

rarediseases.orgROR OpenAlex
Research works
37
▼ 7% vs 2013–17
Citations
736
19.8 per fractional work
Top-10% rate
26.6%
record average 16.5%
Open access
40%
world 28%

Not ranked overall: National Organization for Rare Disorders is under the volume floor below which an excellence rate is noise. Not ranked is not the same as ranked last.

Field profile

Location quotient across every field it publishes in: outside the ring is more than an institution of this size would be expected to publish, inside it is less.

Biochemistry, Genetics and Molecular Biology: 4.43× its world share, 2 worksBiochemistry, Geneti…Immunology and Microbiology: 1.18× its world share, 0 worksImmunology and Micro…Neuroscience: 1.04× its world share, 0 worksNeuroscienceComputer Science: 0.07× its world share, 0 worksComputer ScienceEngineering: 0.24× its world share, 0 worksEngineeringEnvironmental Science: 0.76× its world share, 0 worksEnvironmental ScienceHealth Professions: 1.13× its world share, 0 worksHealth ProfessionsMedicine: 2.26× its world share, 3 worksMedicineEconomics, Econometrics and Finance: 8.40× its world share, 1 worksEconomics, Econometr…Psychology: 0.39× its world share, 0 worksPsychology1×world share
more than its size predictsabout as predictedless

Rings at 0.5×, 1× and 2×. Widest outward: Economics, Econometrics and Finance, 8.4×. Every wedge is a field page.

Which keywords describe research at National Organization for Rare Disorders?

By fractional works in all years, weighted toward what it does more of than the world: Genetic Variants, Sequence Interpretation, Innovation, Pharmaceutical Industry, Cost-effectiveness Analysis, Health Utility Measures, Quality of Life and Global Collaboration.

▲ more of its work than of the world’s◆ about the world’s share▼ less than the world’s

Size is fractional works in all years in the topics tagged with each word; colour is the word's share of this institution's work against its share of the world's. The 37 words are chosen for being large and distinctive. Each links to the topic it comes from most.

All 37 words, with their numbers
  1. Genetic Variants7▲ 84×1 topic
  2. Sequence Interpretation7▲ 747×1 topic
  3. Innovation4▲ 11×3 topics
  4. Pharmaceutical Industry3▲ 222×2 topics
  5. Quality of Life3▲ 6.4×3 topics
  6. Cost-effectiveness Analysis3▲ 101×1 topic
  7. Health Utility Measures3▲ 101×1 topic
  8. Global Collaboration3▲ 181×1 topic
  9. Health Biotechnology3▲ 390×1 topic
  10. Genetic Mutations2▲ 12×4 topics
  11. Drug Development Costs2▲ 246×1 topic
  12. Generic Drugs2▲ 246×1 topic
  13. Healthcare2▲ 8.2×3 topics
  14. Neuroscience2▲ 17×2 topics
  15. Clinical Trials2▲ 7.9×4 topics
  16. Primary Care2▲ 12×3 topics
  17. BRCA12▲ 161×1 topic
  18. BRCA22▲ 161×1 topic
  19. Breast Cancer2▲ 16×2 topics
  20. Precision Medicine2▲ 14×2 topics
  21. Public Health2▲ 3.2×5 topics
  22. Fragile X Syndrome1▲ 111×1 topic
  23. Rett Syndrome1▲ 111×1 topic
  24. Autoantibodies1▲ 13×4 topics
  25. Epidemiology1▼ 0.80×10 topics
  26. Genome Engineering1▲ 53×1 topic
  27. Patient Satisfaction1▲ 13×2 topics
  28. RNA-Guided1▲ 53×1 topic
  29. Rituximab1▲ 20×3 topics
  30. Conflict of Interest1▲ 201×1 topic
  31. Dance Movement Therapy1▲ 223×1 topic
  32. Empathy1▲ 20×1 topic
  33. Injury Patterns1▲ 223×1 topic
  34. Medical Education1▲ 11×1 topic
  35. NHS1▲ 132×1 topic
  36. Policy1▲ 16×1 topic
  37. Research Outcome1▲ 201×1 topic

Which research topics does National Organization for Rare Disorders publish most on?

By volume in 2022–2025: Genomics and Rare Diseases, Health Systems, Economic Evaluations, Quality of Life, CRISPR and Genetic Engineering and Pharmaceutical Economics and Policy.

Genomics and Rare Diseases: 1 fractional worksHealth Systems, Economic Evaluations, Quality of Life: 1 fractional worksCRISPR and Genetic Engin…0CRISPR and Genetic Engineering: 0 fractional worksPharmaceutical Economics…0Pharmaceutical Economics and Policy: 0 fractional worksPharmaceutical studies and practices: 0 fractional worksChronic Lymphocytic Leukemia Research: 0 fractional worksConservation, Biodiversi…0Conservation, Biodiversity, and Resource Management: 0 fractional worksNeurogenetic and Muscular Disorders Research: 0 fractional worksCardiomyopathy and Myosin Studies: 0 fractional worksCystic Fibrosis Research Advances: 0 fractional works
GeneticsEconomics and EconometricsMolecular BiologyPediatrics, Perinatology and Child Health3 others

Area is fractional works; colour is the subfield each topic belongs to.

  1. 1 Genomics and Rare Diseases Genetics 1 works
  2. 2 Health Systems, Economic Evaluations, Quality of Life Economics and Econometrics 1 works
  3. 3 CRISPR and Genetic Engineering Molecular Biology 0 works
  4. 4 Pharmaceutical Economics and Policy Economics and Econometrics 0 works
  5. 5 Pharmaceutical studies and practices Pediatrics, Perinatology and Child Health 0 works
  6. 6 Chronic Lymphocytic Leukemia Research Genetics 0 works
  7. 7 Conservation, Biodiversity, and Resource Management Global and Planetary Change 0 works
  8. 8 Neurogenetic and Muscular Disorders Research Genetics 0 works
  9. 9 Cardiomyopathy and Myosin Studies Cardiology and Cardiovascular Medicine 0 works
  10. 10 Cystic Fibrosis Research Advances Pulmonary and Respiratory Medicine 0 works

How open and international is its research?

Against the world’s own shares — the tick on each track. Both are shares of its output, so they sit on one scale and can be read against each other as well as against the world.

openly available40.2%not open59.8%

World: 28% of research is openly available.

with international co-authors18.6%domestic only81.4%

World: 19% is written across borders.

How has National Organization for Rare Disorders's research output changed?

Output in 2018–2022 was 7% lower than in 2013–2017.

1990200020102020
grewheldshrank

The same series as a ribbon — one cell per year, darker for more. The line above answers how much; this answers when.

Other research institutions in Danbury

All research institutions in Danbury

Research measures only: rankings here say nothing about teaching, admissions or student experience. Comparable institutions and collaboration partners are in the interactive view on the map.